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LadyRev
02-06-2004, 09:56 AM
Searching is being admitted today (probably right this minute) for an LP and to be evaluated by a neurosurgeon. Her condition, PTC, has worsened the last few months and the pain has reached unbearable levels.

Please pray that God will guide the doctors to proceed with the shunt surgery that is needed to relieve the pressure and pain.

Updates on her evaluation and condition will be posted here whenever possible.

Thanks for your prayers.

LilOrphanAnnie
02-06-2004, 10:06 AM
I'm sorry to hear that. I will pray. Here is a link that says what PTC is, I didn't know what it is till I looked. At least I assume that is what it is, it sounds right-

http://www.findmemyhouse.com/ptc/whptc.html

LadyRev
02-06-2004, 11:09 AM
I'm sorry to hear that. I will pray. Here is a link that says what PTC is, I didn't know what it is till I looked. At least I assume that is what it is, it sounds right-

http://www.findmemyhouse.com/ptc/whptc.html

Thats a good website. Thats exactly what Searching suffers with.

Thanks for posting the link and for your prayers.

nightwatchman
02-06-2004, 12:05 PM
Yes we'll pray.................

BrotherBallard
02-06-2004, 02:54 PM
May we inquire to what Searchings name is? I find it easier to pray for someone with a "Name." If Searching doesn't mind that is. Nevertheless, I will pray, God knows who Searching is and that's all that matters!


In His Name!!!

justavessel4him
02-06-2004, 03:20 PM
I am praying for her.]

LadyRev
02-06-2004, 04:36 PM
I spoke with Searching a few minutes ago. She believes they are preparing to do the LP about 4pm. The neurosurgeon is also supposed to discuss shunt options with her. Shes hoping this will all be over soon.

LadyRev
02-06-2004, 04:39 PM
May we inquire to what Searchings name is? I find it easier to pray for someone with a "Name." If Searching doesn't mind that is. Nevertheless, I will pray, God knows who Searching is and that's all that matters!


In His Name!!!

I didn't see this post until after speaking with her on the phone. Shes pretty sedated now but when I speak to her again I will ask her about giving out her first name.

Thanks for your prayers! :)

BrotherBallard
02-06-2004, 04:48 PM
LadyRev,
Does she go to Church with you? I will be praying for her as I already stated.

"The Name of Jesus is greater, and His Blood is more powerful than anything!!!

In His Name!!!

I didn't see this post until after speaking with her on the phone. Shes pretty sedated now but when I speak to her again I will ask her about giving out her first name.

Thanks for your prayers! :)

LadyRev
02-06-2004, 05:19 PM
LadyRev,
Does she go to Church with you? I will be praying for her as I already stated.

"The Name of Jesus is greater, and His Blood is more powerful than anything!!!

In His Name!!!

No, she doesn't go to church with me unless one of us is visiting the other. ;)
But shes a very dear friend of mine. When she has surgery, I plan on being with her. Another GNC member, ApostolicLady, who does go to church with her, has been with her today.

Thanks for your prayers! :)

Diana
02-06-2004, 05:21 PM
I'll be Praying for her to sister..Please let her know that..I always Pray for
everyone on this board,even though I'm not here everyday.
Lord Bless,
Di

BurningforJesus
02-06-2004, 05:28 PM
I will be praying too. I hope this surgery will releive Searching of all the pain she has been suffering and for so long too.

My thoughts are with her.

Burning

LadyRev
02-06-2004, 05:56 PM
I called to check on Searching and spoke with ApostolicLady who is still with her at this time.

They tried the LP and failed. For those that might not know, an LP is a spinal tap. The experience has been traumatic. To make matters worse, they will have to try another one tomorrow.

We'll keep you updated as often as possible.

Seventyx7
02-06-2004, 09:07 PM
Yes, Lady Rev you can believe that our prayers are with Searching. We are a family here on the GNC and even if we haven't meet like Burning said we can still pray for each other and lift each other up. Thanks for keeping us posted on Searching procedures and how she's getting along. I work for an Eye doctor and know that these things are dangerous.

lellingsworth
02-06-2004, 09:45 PM
It should be Joy if it is who I am thinking about but maybe I am wrong.

Jillian
02-06-2004, 10:40 PM
I will be praying also, My heart goes out to her..

Sandy
02-07-2004, 12:27 AM
Will be praying for Searching too.

Love in Christ,
Sandy

LadyRev
02-07-2004, 02:46 AM
Late update...

I had church this evening and then went out with a van load of young people. Just now got home and wanted to make a quick update on Searching.

The neurosurgeon himself tried the LP again after my previous post and this time they were successful. They drained off quite a bit of fluid. She was asleep the last time I called to check on her. Sedated for the night.

The shunt surgery is definitely going to be done the question is when. They are talking about sending her home and then scheduling surgery later according to the neurosurgeon's schedule.

Please pray that they will do the surgery this week. Searching has been miserable for a long time and LP's (traumatic in themselves) are only partial temporary relief. Also, the hospital is two hours away from her home. Running back and forth is a burden in itself. She also has two kids that need her. Its time for this to be over and done with.

Thanks for your prayers. When Searching is alert again, I will share your responses with her.

Christian Woman
02-07-2004, 09:48 AM
I will be praying for Searching, my heart goes out to her. I know exactly how these things can be. Keep encouraging her that God is the healer and is able to take her through this and that He is in control of everything. He allows these things for a reason. "Many are the afflictions of the righteous but the Lord delivereth him from them all"

God bless

LadyRev
02-07-2004, 10:48 AM
I spoke to Searching this morning and she is doing ok. Her back is very sore from the LPs and the headache is still present although not quite as bad at present. She was in pretty good spirits but is adamant about this surgery needing to be done asap. I told her there were alot of people praying for her. Later today she'll be talking with the neurosurgeon to see when they can do the surgery.

LadyRev
02-07-2004, 10:51 AM
May we inquire to what Searchings name is? I find it easier to pray for someone with a "Name." If Searching doesn't mind that is. Nevertheless, I will pray, God knows who Searching is and that's all that matters!


In His Name!!!

I asked her about giving out her first name and she said it was ok. Her name is Joy.

Felicity
02-07-2004, 05:35 PM
Lady Rev.......

I'm praying for Joy as well. Tell her I'll be thinking of her and keep her in my prayers.

LadyRev
02-07-2004, 07:04 PM
I spoke with Searching earlier this afternoon and the news is not good. Once again, it appears shes gonna get the run around regarding the surgery. Shes been through this more than once, each time LPs are done, each time meds are given and surgery discussed. And each time she is sent home for some lame reason without the surgery. This condition is disrupting her life completely. Shes really down again.

UPC Lady
02-07-2004, 08:25 PM
I feel like we all need to bind together on behalf of Searching that the Dr would go ahead and do the surgery now. The Lord can change the Drs mind and I'm believing He is going to do just that. I'm praying for Searching and will continue.

BurningforJesus
02-07-2004, 11:01 PM
I feel like we all need to bind together on behalf of Searching that the Dr would go ahead and do the surgery now. The Lord can change the Drs mind and I'm believing He is going to do just that. I'm praying for Searching and will continue.



I agree, we need to bind together and see the Lord change things for the better for Joy. I will be praying early tomorrow morning (my time) for a miracle from the Lord!!!!!!

Burning

LadyRev
02-09-2004, 12:01 AM
Searching left one hospital last night and went straight to another one that is closer to home. The reason she left the one is because they weren't taking care of her. They weren't giving her the pain meds she needed and they were going to discharge her today anyway. So she left and went to a hospital where her regular doctor is and where she knew she would be taken care of properly. They have been giving her pain meds and they've been helping some, which is better than nothing. She hopes to go home tomorrow. Shes also supposed to contact a neurosurgeon regarding the surgery she needs. Please continue to pray that they will proceed with the surgery. The LPs only bring temporary relief within a few days afterward but then the pressure begins to build again and Searching goes through the whole process again.

I shared all your messages with her. She really appreciates your prayers.

lamama
02-09-2004, 12:45 AM
I shared all your messages with her. She really appreciates your prayers.

Thank you for the update on Searching, LadyRev.

survivor4christ
02-09-2004, 08:42 AM
I will be praying for my Sister...

Love, Sis. Wenona

Apostolic Kitty
02-09-2004, 12:13 PM
Searching left one hospital last night and went straight to another one that is closer to home. The reason she left the one is because they weren't taking care of her. They weren't giving her the pain meds she needed and they were going to discharge her today anyway. So she left and went to a hospital where her regular doctor is and where she knew she would be taken care of properly. They have been giving her pain meds and they've been helping some, which is better than nothing. She hopes to go home tomorrow. Shes also supposed to contact a neurosurgeon regarding the surgery she needs. Please continue to pray that they will proceed with the surgery. The LPs only bring temporary relief within a few days afterward but then the pressure begins to build again and Searching goes through the whole process again.
TBH, I am ANGRY that she keeps getting the run around....

But I am BELIEVING that God will take care of this situation....

I just wish He'd move a little FASTER!

LadyRev
02-09-2004, 11:19 PM
Searching is still in the hospital but at least this hospital is taking care of her properly.

No further word on the surgery.

The teacher
02-10-2004, 03:55 PM
Searching is still in the hospital but at least this hospital is taking care of her properly.

No further word on the surgery.

LadyRev,
We're still in prayer. God bless.

Seventyx7
02-10-2004, 11:37 PM
Thanks for the update on Searching. Keep us posted. Tell her we all said Hi and wish her the best.

LadyRev
02-11-2004, 07:47 PM
Well Searching is STILL in the hospital but shes been moved to a regular room now. She is feeling some better and hopes to go home with each new day.

She has an appt. with a neurosurgeon on monday. Please continue to pray and believe that THIS IS IT and the surgery gets scheduled asap.

Searching thanks all of you for your prayers. She misses you all.

ddc101
02-12-2004, 12:16 AM
Amen sister I have been having her on my heart and asking Jesus to touch her.lv sis.c

searching
02-12-2004, 04:26 PM
I want to thank everyone for their thoughts and prayers. I am home at the moment and as LR already said, I'll be seeing the neurosurgeon on Monday to discuss surgery. I am also in the process of moving so life is a bit hectic at the moment! The scariest part is knowing that I'll have no hair on my head for a while, so I'm going hat shopping next week....LOL!

Thanks again for your prayers and your kindness to me at this time. I appreciate it so very much.

Me...

jdcord
02-12-2004, 04:41 PM
Katie and I are praying for you, Searching. God's gonna take care of you. :angel:

searching
02-12-2004, 04:47 PM
Katie and I are praying for you, Searching. God's gonna take care of you. :angel:


Thanks JD. I told Katie a couple weeks ago I would call her back and haven't done that yet. I will be talking to her before surgery though, cause I have some questions for her. Love ya's.

Me...

jdcord
02-12-2004, 05:00 PM
Thanks JD. I told Katie a couple weeks ago I would call her back and haven't done that yet. I will be talking to her before surgery though, cause I have some questions for her. Love ya's.

Me...
Just FYI, we will be away from home starting tonight thru Saturday early evening. But After that we return to normal - for a while anyway (and if we can be considered "normal"). :yeah:

Felicity
02-12-2004, 09:14 PM
Searching........

Just a reminder again that you're being remembered in prayer and in our thoughts. You've got lots of people who love you and are interceding on your behalf. I know that's a comfort to you.

Love you........

searching
02-12-2004, 10:11 PM
I am in bad need of prayers tonight. I'm in a lot of pain now that all the drugs have wore off and may be headed to the ER tonight if it doesn't subside. Those of you who know me know that I have dealt with a lot of pain, and for me to even take a pill or talk of going to the ER knows that this is more than I can bear.

Me...

ddc101
02-13-2004, 12:46 AM
In Jesus Name Lord let the blood circulate properly through sister Joys head.Dilate vessels that need it and constrict those that need it.Let the peace of God which rules in her heart and mind keep her in perfact peace.
Bless her.Sister when you read this put your hands on your head and pray for yourself.I bind pain,I bind infirmity,I bind suffering,I loose healing,I loose blessing,I loose the work of Calvary to cover my sisters mind and free her from every evil intention of the enemy to cause her pain and suffering and buffet her mind.I pray right now for the blood that covers her to concentrate on the areas that need healing and let a miricle happen for her Jesus.Give her physical and spiritual strength.lv sis.c

Apostolic Kitty
02-13-2004, 12:58 PM
In Jesus Name Lord let the blood circulate properly through sister Joys head.Dilate vessels that need it and constrict those that need it.Let the peace of God which rules in her heart and mind keep her in perfact peace.
Bless her.Sister when you read this put your hands on your head and pray for yourself.I bind pain,I bind infirmity,I bind suffering,I loose healing,I loose blessing,I loose the work of Calvary to cover my sisters mind and free her from every evil intention of the enemy to cause her pain and suffering and buffet her mind.I pray right now for the blood that covers her to concentrate on the areas that need healing and let a miricle happen for her Jesus.Give her physical and spiritual strength.lv sis.c
I stand in agreement with Sis. Cooper in this prayer, Lord.

searching
02-17-2004, 08:27 PM
I am updating those who want to know how I am doing. I saw the neurosurgeon in St. Louis on Monday. He basically denied that I even have PTC, although I have never been told that by any other docs I have seen, and I've also done my own research on this illness and I'm also convinced that I have PTC. He stated that he would look at my past medical history but if he didn't see anything convincing, he wouldn't do the surgery.

I met a woman through the PTC support website who lives in Chicago. She was just diagnosed in December and already had surgery. According to what she told me, her symptoms were not as severe as mine have been, and she referred me to her neurosurgeon and I have an appointment with him on Feb. 26th in Chicago.

For those of you who suffer from chronic pain, I can totally understand why someone would take their own life rather than suffer constantly. I was frustrated yesterday after the disappointment and I think I scared a couple friends with things I said, but this is a big struggle for me. It's a bigger struggle to continue having faith in God that He knows what is best for me, and to not ask Him why I'm going through this.

I thank you all for your prayers, and I'm glad I have brothers and sisters I have never met and probably never will who care for me and pray for me. You have no idea how much that means to me.

Me...

John Atkinson
02-17-2004, 08:52 PM
Sister, we are praying for you continually and believe God with you and for you. Like you sig, I consider you to be a jewel...valuable, rare, and precious.

Have confidence, God has not forgotten you, and niether have any of your family here on the GNC.

searching
02-17-2004, 08:53 PM
Sister, we are praying for you continually and believe God with you and for you. Like you sig, I consider you to be a jewel...valuable, rare, and precious.

Have confidence, God has not forgotten you, and niether have any of your family here on the GNC.

Bro. John, you have no idea how much this means to me. Thanks.

Me...

Cherokee
02-17-2004, 09:22 PM
In the Name of Jesus I ask you Our Heavenly Father to heal my Sister from the top of her head to the tip of her toes as only You can mighty God and Savior.
I command all the signs and symptoms of PTC to leave her body right now and go back to torment the enemy that has tried to steal her victory and healing in Jesus Name!


Precious Sister......God loves you and He will bring you out of this pain.
We are binding together in Jesus Name for that purpose.


The hardest thing is to start thanking God for the problem, take the glory away from satan and laugh in his face, just start laughing that he would dare think he was in control for God allowed this to come so He could work a miracle to His glory for you.

All things work together for good!
For whatever happens you win!!! You've already read the Book!
Wish I could reach out and just hold your hand right now and give you all the strength I could this very minute.

Love Ya' in Jesus!!!!!.....Cherokee

searching
02-17-2004, 10:50 PM
Thank you my dear sister. Thank you so much.

Me...

searching
02-26-2004, 11:16 PM
I saw the neurosurgeon in Chicago today and it was all good news. My surgery is set for Friday, March 12th. This surgery has some risks involved, but they are ones I am willing to take rather than continue living as I am. I need your prayers for a little bit longer, and I thank all of you who have prayed for me and continue to do so.

God bless all of you.

Me...

lellingsworth
02-27-2004, 12:41 AM
I saw the neurosurgeon in Chicago today and it was all good news. My surgery is set for Friday, March 12th. This surgery has some risks involved, but they are ones I am willing to take rather than continue living as I am. I need your prayers for a little bit longer, and I thank all of you who have prayed for me and continue to do so.

God bless all of you.

Me...

Go Jesus, Go Jesus, Go Jesus, :banana: See, I told you that tongue talking typing would work!! (kjkdfkdfkjkj**(I&&Y*%$##@^))

UPC Lady
02-27-2004, 06:23 AM
Searching,
I was so thrilled when I heard the news of your surgery yesterday! I had prayed for you yesterday and asked the Lord to let the Dr. see your need for surgery. I pray for you daily and will continue doing so. The Lord will go before you when you have surgery and will be with you during the surgery and will guide the hands of the surgeon! Love ya, Glenda

BurningforJesus
03-04-2004, 05:18 PM
Sister Searching, I have been praying for you for a while. I will continue to pray for you, that you will feel the presence of the Lord right through the pre-op, surgery and post operatively too. He sure has His hand on you. :)

Burning

Cherokee
03-04-2004, 09:03 PM
Is there an update on Searching? We need to hear from you our Beloved Sister.

Love Ya' in Jesus!!!!.....Cherokee

searching
03-04-2004, 11:12 PM
Is there an update on Searching? We need to hear from you our Beloved Sister.

Love Ya' in Jesus!!!!.....Cherokee

I am having my surgery on Friday, March 12th, in Chicago. I will have a shunt implanted in my head that drains CSF to my tummy. This will alleviate the intercranial pressure in my head caused from an overproduction of spinal fluid. This will be a permanent thing, and the last resort since the spinal taps and medications have failed. God has never failed me though, and I know He has His hand on me and on the surgeon.

Me...

Marie
03-05-2004, 01:39 AM
Sister, I am still praying for you! God bless you!
Here's another group hug for you...
And a teddybear. :) Everyone needs a teddy when they are in hospital!